You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You’re stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?
This is not a hypothetical for me.
I lived this for years.
First, you’ll want to look into government disability support. The specifics will vary wildly depending where you are, but it’s probably your most useful resource. For me, along with the money, they had tailored support for finding work I could do.
They ended up finding me a part time, WFH call center job. There were incentives for the employer to take me because of my disability and assistance (including financial) for setting me up for it. It was still extremely hard but the disability support checked in on me regularly to help me through it.
Before that, there are plenty of ways to make money online. Too many to list. If you’ve got the basic skills, the equipment and you’re still able to function enough it’s worth trying.
There is also going to be a variety of various charity and government support programs for people with disabilities, low income earners, etc. with the specifics depending on where you are. The harsh reality is surviving will mean learning to swallow your pride and enduring shame. Don’t just look for “disability” support, take anything you might be applicable for. Make sure to look through every level of government you might come under as they aren’t unified and can be difficult to find.
Community groups can be an invaluable resource. If there are ones that might apply to you - whether it be around ethnicity, sexuality, religion, whatever - you can find a wealth of assistance. At the very least they’re going to have some free food.
I’m just coming around to the idea of trying again. My family will only be around for so long. After a 3 year court case against the responsible party, never getting better and instead coming to terms with declining more and more, then having disability fall through; it was all too much. I’ve been totally disenfranchised for far too long, but just fighting to barely survive in near total social isolation is not very motivating. Thanks for sharing.
It might be worth looking for a family practitioner (that’s the American term for a general doctor right?) that advertises experience with mental health. Queer friendly and poor (and the many euphemisms they use) assistance is also a good sign. Talk about how your disability is effecting your mental health, ask if they have recommendations for both.
The reason I recommend this is you’re looking for people with empathy. Bureaucracies are made of people first and foremost, checking the right boxes is second to having someone who will make sure the right box gets checked. People who deal with mental health, queerness and poverty are also far more likely to have the experience to point you in the right direction with government services. They probably wont be the end of your journey but they’ll be a good guide.