You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You’re stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?
This is not a hypothetical for me.
If it is ME/CFS come over to !cfs@feddit.de.
We’re not very active but try to keep up with the state of research.